The Learning Disabilities Mortality Review (LeDeR) Programme is delivered by the University of Bristol. It is commissioned by the Healthcare Quality Improvement Partnership (HQIP) on behalf of NHS England.
Work on the LeDeR programme commenced in June 2015 for an initial three-year period. A key part of the LeDeR Programme is to support local areas to review the deaths of people with learning disabilities. The Programme is developing and rolling out a review process for the deaths of people with learning disabilities, helping to promote and implement the new review process, and providing support to local areas to take forward the lessons learned in the reviews in order to make improvements to service provision. The LeDeR Programme will also collate and share the anonymised information about the deaths of people with learning disabilities so that common themes, learning points and recommendations can be identified and taken forward into policy and practice improvements. A document showing more information is available here.
Further information, including information in an easy-read format is available here: www.bristol.ac.uk/sps/leder/about/programme-leaflets
The Family Perspective
Robina Mallett, family carer and member of the National LeDeR steering group has published a blog about supporting people with a learning disability to get good healthcare.
End of Life and palliative care for people with Learning Disabilities
Please see the recent publication ‘Delivering high quality end of life care for people who have a learning disability’
The Palliative Care for people with learning disability network has recently acquired charitable status. To find out more about the network please go to: www.pcpld.org.